Monday, April 13, 2015

Dr Hamersley, Wtf appointment..

My wtf appointment with RE wasn't much different from all the others. I asked what his thought were why this didn't work. he had no explanation but says he continues to be optimistic.  I am sure he is programmed to say this to patients every failed cycle. He told us this normal embryo was a female. My gut feeling was right when I decided to crochet that baby dress after my transfer. He said he had put in a request for intralipids to the clinic. I am not holding my breath as he also did this last summer after my miscarriage and it was denied. Also, he said that Braverman was not the RI he was thinking of. Other than Sher there are no others on the East coast so I don't know if he was just making up an excuse?. In any case, we would have to pay $3,000 to Dr Braverman (this fee is for cost for ivf transfer but since we are in a guarantee program with our clinic we cannot do this. However, we would still have to pay this fee and that does not include any of the out of pocket cost of the actual immune testing. Re said he cannot interpret the tests results and that I would have to switch clinics. We still have 2 frozen embryos so that is out of the question.

The good news is that we met with Dr Hamersley. She spoke with us over 2 hours and we really like her. First she went through all my miscarriages one by one in detail. Then all the testing I have done so far. Dr H showed us a study and protocol that she feels will work for me. She also prescribed the higher dose of prednisolone I have been begging from my RE for over a year now! Dr H also agrees that I have an inflammation problem, most likely due to autoimmune disease and endometriosis.

Dr H is the first doctor who had actually addessed my Mthfr mutation. She gave me a prescription for Metanx (3mg methylfolate). I told her that I have been taking Thorne prenatal which has 1 mg, despite other doctors saying heterozygous c677t was not a contributing factor to my miscarriages.  When I told her about the over-methylation rashes I get when taking it for several months, she said that can be remedied with Niacin (vit B3). Unfortunately the "flushing" I get from 500mg  is unbearable. It's like a bad sunburn and lasts for several hours! So I will have to switch to a low dose and see if I can stand it.

In the study Dr H printed out, it outlines women doing ivf with known thyroid issues. She is pretty sure that although all my thyroid tests come back fine that I will need to take meds and have my thyroid monitored once I do another FET because she thinks it acts up once I am pregnant. Dr H encouraged me to continue acupuncture as she is a big believer in it. She feels that the lovenox helps with inflammation problem,but maybe I shouldn't start it as early as 3 weeks before transfer as it possibly interfered with building my endometrial lining. This is my opinion on the lovenox, but she agreed that it could be a factor and I should start it only after I have my lining check and it is optimal.

I really like that she emphasizes an anti-inflammatory diet and exercise. She made me feel good about everything I have been doing so far.  Yoga, pilates, acupuncture, no sugar. Lots of organic fruits and veggies. Oh, and she stressed that I should completely cut out sugar while taking prednisolone as it really affects blood sugar. She agrees that the laparoscopy will be a good thing because I definately have all the symptoms and she said that sometimes in the later stages endo symptoms will actually disappear but that the endo is still there causing inflammation. This makes perfect sense because for most of my life I could barely function due to the cramps and vomitting.  I thought cutting out red meat and taking various supplements like Primrose oil had gotten rid of the endo since my symptoms are very mild now. Dr h said eno never just goes away.  Cleaning it all our could be just what I need.

She couldn't believe that other doctors have ignored my positive ANA that has remained that way for the last 9 yrs.  I am sure I missed some info in this post as it was a 2 hour appoint and so much was said. Dh usually remains quiet but he asked her alot of questions and told her some things I had forgotten to mention. I am happy that he liked her and thought that she had done alot of research on our behalf.

So the next step an appointment with my gyno Dr Morosov. He did my hysteroscopy in 2010 and is an excellent surgeon. We will schedule a laparoscopy this summer.

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